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Towards Hormone Health: An Autoethnography of Long-Term Holistic Tracking to Manage PCOS

  • Daye Kang
  • , Jingjin Li
  • , Gilly Leshed
  • , Jeffrey M. Rzeszotarski
  • , Xi Lu
  • Cornell University
  • AImpower.org

Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review

16 Scopus citations

Abstract

Polycystic ovary syndrome (PCOS) is a common hormonal disorder affecting 11-13% of women of reproductive age, characterized by a wide range of symptoms (e.g., menstrual irregularity, acne, and obesity) that varies among individuals. While self-tracking tools help PCOS patients to monitor their symptoms and find personalized treatment, they often focus on regular periods of healthy women with inadequate support for the 1) personalization and 2) long-term holistic tracking necessary for managing complex chronic conditions like PCOS. To bridge this gap, the first author (who has PCOS) conducted an autoethnographic study of holistic self-tracking over a period of ten months in an effort to manage her condition. Our results highlight the challenges of personalized, holistic, long-term tracking in medical, socio-cultural, temporal, technical, and spatial contexts. Based on these insights, we provide design implications for tracking tools that are more inclusive and sustainable.

Original languageEnglish
Title of host publicationCHI 2025 - Proceedings of the 2025 CHI Conference on Human Factors in Computing Systems
PublisherAssociation for Computing Machinery
ISBN (Electronic)9798400713941
DOIs
StatePublished - Apr 26 2025
Event2025 CHI Conference on Human Factors in Computing Systems, CHI 2025 - Yokohama, Japan
Duration: Apr 26 2025May 1 2025

Publication series

NameConference on Human Factors in Computing Systems - Proceedings

Conference

Conference2025 CHI Conference on Human Factors in Computing Systems, CHI 2025
Country/TerritoryJapan
CityYokohama
Period04/26/2505/1/25

Keywords

  • PCOS
  • autoethnography
  • hormone health
  • self-tracking
  • women's health

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