Abstract
The purpose of this prospective study was to develop a grounded theory explaining the process that family decision makers use to make care decisions with or for a family member with advanced cancer. Adult surrogate decision makers were recruited for multiple interviews over the patient's care trajectory: 40 surrogates provided 80 semi-structured interviews. Analysis of these narratives revealed a process of responsive care management that is inclusive of, but not limited to, decision-making roles. Monitoring, buffering, and taking over comprise the three phases of the process. Decision making was embedded within the family member's broader relational and care responsibilities
| Original language | English |
|---|---|
| Pages (from-to) | 107-122 |
| Number of pages | 16 |
| Journal | Journal of Clinical Ethics |
| Volume | 22 |
| Issue number | 2 |
| DOIs | |
| State | Published - 2011 |
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