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Partners in caregiving: A psychoeducation program affecting dementia family caregivers' distress and caregiving outlook

  • Kenneth W. Hepburn
  • , Marsha Lewis
  • , Suzanne Narayan
  • , Bruce Center
  • , Jane Tornatore
  • , Karin Lindstrom Bremer
  • , Laura Nelson Kirk
  • University of Minnesota Twin Cities
  • Metropolitan State University
  • Screen Inc.

Research output: Contribution to journalArticlepeer-review

27 Scopus citations

Abstract

This article presents the results of a randomized trial to test a psychoeducation intervention's ability to relieve or forestall dementia caregiver distress over a one-year period. We also introduce a global measure of caregiver distress developed during the trial. Based in a stress mediation framework, the intervention aimed to increase caregiver knowledge and skills and develop a more clinical perspective on caregiving through a six-week (2-hour per week) program. A total of 215 dyads (caregivers and care receivers) were randomized into two experimental groups and a wait-list control group. Results confirm the assertion that strengthening caregivers' ability to better understand and undertake their caregiving role staves off increasing distress (p = .035) and improves caregiving attitude (p = .016) at 6 months. However, at one-year, between-group effects deteriorated on key measures, pointing out an inherent weakness of offering a stand-alone program. The Distress measure demonstrated stability at six months (coefficient = .75) and twelve months (coefficient = .72).

Original languageEnglish
Pages (from-to)53-69
Number of pages17
JournalClinical Gerontologist
Volume29
Issue number1
DOIs
StatePublished - 2005

Keywords

  • Caregiver distress
  • Dementia
  • Family caregiver
  • Psychoeducation

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