Editorial by concerned physicians: Unintended effect of the orphan drug act on the potential cost of 3,4-diaminopyridine

Ted M. Burns; Gordon A. Smith; Jeffrey A. Allen; Anthony A. Amato; W. David Arnold; Richard Barohn; Michael Benatar; Shawn J. Bird; Mark Bromberg; Nizar Chahin; Emma Ciafaloni; Jeffrey A. Cohen; Andrea Corse; Brian A. Crum; William S. David; Elliot Dimberg; Eduardo A. De Sousa; Peter D. Donofrio; P. James B. Dyck; Andrew G. Engel; Erik R. Ensrud; Mark Ferrante; Miriam Freimer; Karissa L. Gable; Summer Gibson; James M. Gilchrist; Jonathan M. Goldstein; Clifton L. Gooch; Brent P. Goodman; Dmitri Gorelov; Sidney M. Gospe; Namita A. Goyal; Amanda C. Guidon; Jeffrey T. Guptill; Laurie Gutmann; Ludwig Gutmann; Kelly Gwathmey; Yadollah Harati; C. Michel Harper; Michael K. Hehir; Lisa D. Hobson-Webb; James F. Howard; Carlayne E. Jackson; Nicholas Johnson; Sarah M. Jones; Vern C. Juel; Henry J. Kaminski; Chafic Karam; Kathleen D. Kennelly; Sami Khella; Julie Khoury; John C. Kincaid; John T. Kissel; Noah Kolb; David Lacomis; Shafeeq Ladha; Daniel Larriviere; Richard A. Lewis; Yuebing Li; William J. Litchy; Eric Logigian; Jau Shin Lou; Daniel J.L. Macgowen; Ricardo Maselli; Janice M. Massey; Michelle L. Mauermann; Katherine D. Mathews; Matthew N. Meriggioli; Robert G. Miller; Joon Shik Moon; Tahseen Mozaffar; Sharon P. Nations; Richard J. Nowak; Lyle W. Ostrow; Robert M. Pascuzzi; Amanda Peltier; Katherine Ruzhansky; David P. Richman; Mark A. Ross; Devon I. Rubin; James A. Russell; George M. Sachs; Mohammad Kian Salajegheh; David S. Saperstein; Stephen Scelsa; Duygu Selcen; Aziz Shaibani; Perry B. Shieh; Nicholas J. Silvestri; J. Rob Singleton; Benn E. Smith; Yuen T. So; Guillermo Solorzano; Eric J. Sorenson; Jayashri Srinivasen; Jinny Tavee; Rabi Tawil; Pariwat Thaisetthawatkul; Charles Thornton; Jaya Trivedi; Steven Vernino; Annabel K. Wang; Tyler A. Webb; Michael D. Weiss; Anthony J. Windebank; Gil I. Wolfe

doi:10.1002/mus.25009

Editorial by concerned physicians: Unintended effect of the orphan drug act on the potential cost of 3,4-diaminopyridine

Ted M. Burns
, Gordon A. Smith
, Jeffrey A. Allen
, Anthony A. Amato
, W. David Arnold
, Richard Barohn
, Michael Benatar
, Shawn J. Bird
, Mark Bromberg
, Nizar Chahin
, Emma Ciafaloni
, Jeffrey A. Cohen
, Andrea Corse
, Brian A. Crum
, William S. David
, Elliot Dimberg
, Eduardo A. De Sousa
, Peter D. Donofrio
, P. James B. Dyck
, Andrew G. Engel

Erik R. Ensrud, Mark Ferrante, Miriam Freimer, Karissa L. Gable, Summer Gibson, James M. Gilchrist, Jonathan M. Goldstein, Clifton L. Gooch, Brent P. Goodman, Dmitri Gorelov, Sidney M. Gospe, Namita A. Goyal, Amanda C. Guidon, Jeffrey T. Guptill, Laurie Gutmann, Ludwig Gutmann, Kelly Gwathmey, Yadollah Harati, C. Michel Harper, Michael K. Hehir, Lisa D. Hobson-Webb, James F. Howard, Carlayne E. Jackson, Nicholas Johnson, Sarah M. Jones, Vern C. Juel, Henry J. Kaminski, Chafic Karam, Kathleen D. Kennelly, Sami Khella, Julie Khoury, John C. Kincaid, John T. Kissel, Noah Kolb, David Lacomis, Shafeeq Ladha, Daniel Larriviere, Richard A. Lewis, Yuebing Li, William J. Litchy, Eric Logigian, Jau Shin Lou, Daniel J.L. Macgowen, Ricardo Maselli, Janice M. Massey, Michelle L. Mauermann, Katherine D. Mathews, Matthew N. Meriggioli, Robert G. Miller, Joon Shik Moon, Tahseen Mozaffar, Sharon P. Nations, Richard J. Nowak, Lyle W. Ostrow, Robert M. Pascuzzi, Amanda Peltier, Katherine Ruzhansky, David P. Richman, Mark A. Ross, Devon I. Rubin, James A. Russell, George M. Sachs, Mohammad Kian Salajegheh, David S. Saperstein, Stephen Scelsa, Duygu Selcen, Aziz Shaibani, Perry B. Shieh, Nicholas J. Silvestri, J. Rob Singleton, Benn E. Smith, Yuen T. So, Guillermo Solorzano, Eric J. Sorenson, Jayashri Srinivasen, Jinny Tavee, Rabi Tawil, Pariwat Thaisetthawatkul, Charles Thornton, Jaya Trivedi, Steven Vernino, Annabel K. Wang, Tyler A. Webb, Michael D. Weiss, Anthony J. Windebank, Gil I. Wolfe

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Research output: Contribution to journal › Editorial

21 Scopus citations

Original language	English
Pages (from-to)	165-168
Number of pages	4
Journal	Muscle and Nerve
Volume	53
Issue number	2
DOIs	https://doi.org/10.1002/mus.25009
State	Published - Feb 1 2016

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10.1002/mus.25009

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Burns, T. M., Smith, G. A., Allen, J. A., Amato, A. A., Arnold, W. D., Barohn, R., Benatar, M., Bird, S. J., Bromberg, M., Chahin, N., Ciafaloni, E., Cohen, J. A., Corse, A., Crum, B. A., David, W. S., Dimberg, E., De Sousa, E. A., Donofrio, P. D., Dyck, P. J. B., ... Wolfe, G. I. (2016). Editorial by concerned physicians: Unintended effect of the orphan drug act on the potential cost of 3,4-diaminopyridine. Muscle and Nerve, 53(2), 165-168. https://doi.org/10.1002/mus.25009

@article{3da1b8a75b964ce58faf83ac72777750,

title = "Editorial by concerned physicians: Unintended effect of the orphan drug act on the potential cost of 3,4-diaminopyridine",

author = "Burns, \{Ted M.\} and Smith, \{Gordon A.\} and Allen, \{Jeffrey A.\} and Amato, \{Anthony A.\} and Arnold, \{W. David\} and Richard Barohn and Michael Benatar and Bird, \{Shawn J.\} and Mark Bromberg and Nizar Chahin and Emma Ciafaloni and Cohen, \{Jeffrey A.\} and Andrea Corse and Crum, \{Brian A.\} and David, \{William S.\} and Elliot Dimberg and \{De Sousa\}, \{Eduardo A.\} and Donofrio, \{Peter D.\} and Dyck, \{P. James B.\} and Engel, \{Andrew G.\} and Ensrud, \{Erik R.\} and Mark Ferrante and Miriam Freimer and Gable, \{Karissa L.\} and Summer Gibson and Gilchrist, \{James M.\} and Goldstein, \{Jonathan M.\} and Gooch, \{Clifton L.\} and Goodman, \{Brent P.\} and Dmitri Gorelov and Gospe, \{Sidney M.\} and Goyal, \{Namita A.\} and Guidon, \{Amanda C.\} and Guptill, \{Jeffrey T.\} and Laurie Gutmann and Ludwig Gutmann and Kelly Gwathmey and Yadollah Harati and Harper, \{C. Michel\} and Hehir, \{Michael K.\} and Hobson-Webb, \{Lisa D.\} and Howard, \{James F.\} and Jackson, \{Carlayne E.\} and Nicholas Johnson and Jones, \{Sarah M.\} and Juel, \{Vern C.\} and Kaminski, \{Henry J.\} and Chafic Karam and Kennelly, \{Kathleen D.\} and Sami Khella and Julie Khoury and Kincaid, \{John C.\} and Kissel, \{John T.\} and Noah Kolb and David Lacomis and Shafeeq Ladha and Daniel Larriviere and Lewis, \{Richard A.\} and Yuebing Li and Litchy, \{William J.\} and Eric Logigian and Lou, \{Jau Shin\} and Macgowen, \{Daniel J.L.\} and Ricardo Maselli and Massey, \{Janice M.\} and Mauermann, \{Michelle L.\} and Mathews, \{Katherine D.\} and Meriggioli, \{Matthew N.\} and Miller, \{Robert G.\} and Moon, \{Joon Shik\} and Tahseen Mozaffar and Nations, \{Sharon P.\} and Nowak, \{Richard J.\} and Ostrow, \{Lyle W.\} and Pascuzzi, \{Robert M.\} and Amanda Peltier and Katherine Ruzhansky and Richman, \{David P.\} and Ross, \{Mark A.\} and Rubin, \{Devon I.\} and Russell, \{James A.\} and Sachs, \{George M.\} and Salajegheh, \{Mohammad Kian\} and Saperstein, \{David S.\} and Stephen Scelsa and Duygu Selcen and Aziz Shaibani and Shieh, \{Perry B.\} and Silvestri, \{Nicholas J.\} and Singleton, \{J. Rob\} and Smith, \{Benn E.\} and So, \{Yuen T.\} and Guillermo Solorzano and Sorenson, \{Eric J.\} and Jayashri Srinivasen and Jinny Tavee and Rabi Tawil and Pariwat Thaisetthawatkul and Charles Thornton and Jaya Trivedi and Steven Vernino and Wang, \{Annabel K.\} and Webb, \{Tyler A.\} and Weiss, \{Michael D.\} and Windebank, \{Anthony J.\} and Wolfe, \{Gil I.\}",

year = "2016",

month = feb,

day = "1",

doi = "10.1002/mus.25009",

language = "English",

volume = "53",

pages = "165--168",

journal = "Muscle and Nerve",

issn = "0148-639X",

publisher = "John Wiley \& Sons Inc.",

number = "2",

}

Burns, TM, Smith, GA, Allen, JA, Amato, AA, Arnold, WD, Barohn, R, Benatar, M, Bird, SJ, Bromberg, M, Chahin, N, Ciafaloni, E, Cohen, JA, Corse, A, Crum, BA, David, WS, Dimberg, E, De Sousa, EA, Donofrio, PD, Dyck, PJB, Engel, AG, Ensrud, ER, Ferrante, M, Freimer, M, Gable, KL, Gibson, S, Gilchrist, JM, Goldstein, JM, Gooch, CL, Goodman, BP, Gorelov, D, Gospe, SM, Goyal, NA, Guidon, AC, Guptill, JT, Gutmann, L, Gutmann, L, Gwathmey, K, Harati, Y, Harper, CM, Hehir, MK, Hobson-Webb, LD, Howard, JF, Jackson, CE, Johnson, N, Jones, SM, Juel, VC, Kaminski, HJ, Karam, C, Kennelly, KD, Khella, S, Khoury, J, Kincaid, JC, Kissel, JT, Kolb, N, Lacomis, D, Ladha, S, Larriviere, D, Lewis, RA, Li, Y, Litchy, WJ, Logigian, E, Lou, JS, Macgowen, DJL, Maselli, R, Massey, JM, Mauermann, ML, Mathews, KD, Meriggioli, MN, Miller, RG, Moon, JS, Mozaffar, T, Nations, SP, Nowak, RJ, Ostrow, LW, Pascuzzi, RM, Peltier, A, Ruzhansky, K, Richman, DP, Ross, MA, Rubin, DI, Russell, JA, Sachs, GM, Salajegheh, MK, Saperstein, DS, Scelsa, S, Selcen, D, Shaibani, A, Shieh, PB, Silvestri, NJ, Singleton, JR, Smith, BE, So, YT, Solorzano, G, Sorenson, EJ, Srinivasen, J, Tavee, J, Tawil, R, Thaisetthawatkul, P, Thornton, C, Trivedi, J, Vernino, S, Wang, AK, Webb, TA, Weiss, MD, Windebank, AJ & Wolfe, GI 2016, 'Editorial by concerned physicians: Unintended effect of the orphan drug act on the potential cost of 3,4-diaminopyridine', Muscle and Nerve, vol. 53, no. 2, pp. 165-168. https://doi.org/10.1002/mus.25009

TY - JOUR

T1 - Editorial by concerned physicians

T2 - Unintended effect of the orphan drug act on the potential cost of 3,4-diaminopyridine

AU - Burns, Ted M.

AU - Smith, Gordon A.

AU - Allen, Jeffrey A.

AU - Amato, Anthony A.

AU - Arnold, W. David

AU - Barohn, Richard

AU - Benatar, Michael

AU - Bird, Shawn J.

AU - Bromberg, Mark

AU - Chahin, Nizar

AU - Ciafaloni, Emma

AU - Cohen, Jeffrey A.

AU - Corse, Andrea

AU - Crum, Brian A.

AU - David, William S.

AU - Dimberg, Elliot

AU - De Sousa, Eduardo A.

AU - Donofrio, Peter D.

AU - Dyck, P. James B.

AU - Engel, Andrew G.

AU - Ensrud, Erik R.

AU - Ferrante, Mark

AU - Freimer, Miriam

AU - Gable, Karissa L.

AU - Gibson, Summer

AU - Gilchrist, James M.

AU - Goldstein, Jonathan M.

AU - Gooch, Clifton L.

AU - Goodman, Brent P.

AU - Gorelov, Dmitri

AU - Gospe, Sidney M.

AU - Goyal, Namita A.

AU - Guidon, Amanda C.

AU - Guptill, Jeffrey T.

AU - Gutmann, Laurie

AU - Gutmann, Ludwig

AU - Gwathmey, Kelly

AU - Harati, Yadollah

AU - Harper, C. Michel

AU - Hehir, Michael K.

AU - Hobson-Webb, Lisa D.

AU - Howard, James F.

AU - Jackson, Carlayne E.

AU - Johnson, Nicholas

AU - Jones, Sarah M.

AU - Juel, Vern C.

AU - Kaminski, Henry J.

AU - Karam, Chafic

AU - Kennelly, Kathleen D.

AU - Khella, Sami

AU - Khoury, Julie

AU - Kincaid, John C.

AU - Kissel, John T.

AU - Kolb, Noah

AU - Lacomis, David

AU - Ladha, Shafeeq

AU - Larriviere, Daniel

AU - Lewis, Richard A.

AU - Li, Yuebing

AU - Litchy, William J.

AU - Logigian, Eric

AU - Lou, Jau Shin

AU - Macgowen, Daniel J.L.

AU - Maselli, Ricardo

AU - Massey, Janice M.

AU - Mauermann, Michelle L.

AU - Mathews, Katherine D.

AU - Meriggioli, Matthew N.

AU - Miller, Robert G.

AU - Moon, Joon Shik

AU - Mozaffar, Tahseen

AU - Nations, Sharon P.

AU - Nowak, Richard J.

AU - Ostrow, Lyle W.

AU - Pascuzzi, Robert M.

AU - Peltier, Amanda

AU - Ruzhansky, Katherine

AU - Richman, David P.

AU - Ross, Mark A.

AU - Rubin, Devon I.

AU - Russell, James A.

AU - Sachs, George M.

AU - Salajegheh, Mohammad Kian

AU - Saperstein, David S.

AU - Scelsa, Stephen

AU - Selcen, Duygu

AU - Shaibani, Aziz

AU - Shieh, Perry B.

AU - Silvestri, Nicholas J.

AU - Singleton, J. Rob

AU - Smith, Benn E.

AU - So, Yuen T.

AU - Solorzano, Guillermo

AU - Sorenson, Eric J.

AU - Srinivasen, Jayashri

AU - Tavee, Jinny

AU - Tawil, Rabi

AU - Thaisetthawatkul, Pariwat

AU - Thornton, Charles

AU - Trivedi, Jaya

AU - Vernino, Steven

AU - Wang, Annabel K.

AU - Webb, Tyler A.

AU - Weiss, Michael D.

AU - Windebank, Anthony J.

AU - Wolfe, Gil I.

PY - 2016/2/1

Y1 - 2016/2/1

UR - https://www.scopus.com/pages/publications/84956584964

U2 - 10.1002/mus.25009

DO - 10.1002/mus.25009

M3 - Editorial

C2 - 26662952

AN - SCOPUS:84956584964

SN - 0148-639X

VL - 53

SP - 165

EP - 168

JO - Muscle and Nerve

JF - Muscle and Nerve

IS - 2

ER -

Editorial by concerned physicians: Unintended effect of the orphan drug act on the potential cost of 3,4-diaminopyridine

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